Page 4 - MidWeek Windward - April 27, 2022

4 APRIL 27, 2022
Family Members, Hospital Rally Around National Champion From Kailua
FROM PAGE 1
tomized plan of care. It in- cluded more than 10 surger- ies before Haumea reached age 5. In 2019, she under- went a complex 16-hour surgical procedure called rotationplasty. She also re- ceived a prosthetic leg that she named “Sparkle.”
video from Kapi‘olani. “She’s a solid kid,” adds
“She’s a champion that represents so much of what I see here in her success. I think that she’s a fighter and her family’s the best support system I’ve ever seen.”
dad Calen.
Haumea was born with a
condition called proximal femoral focal deficiency, which affects about 1 in every 200,000 children. It causes the upper part of the femur bone to be either malformed or missing.
Even today, she con- tinues to have regularly scheduled physical therapy appointments at Kapi‘olani.
“From day one, if you ask Haumea, ‘You going to give up?’ she’s like ‘No, I never give up.’ She never gave up and the hospital never gave up,” states Hau- mea’s grandfather Michael Ocasek.
year to raise support, funds and awareness for the 170 CMN hospitals in the Unit- ed States and Canada.
“She came in with a very complex problem. She was born without a hip joint with a very short thigh bone, and trying to reconstruct that to a useful limb is a challenge,” states Kapi‘olani pediatric ortho- pedic surgeon Dr. William Burkhalter.
“Sparkle is my prosthetic leg that can help me walk and run and bounce. Noth- ing can stop it,” states Hau- mea.
Kapi‘olani Medical Cen- ter is Hawai‘i’s only CMN Hospital and it emphasizes that gifts made in the state stay here with 100% of the funds helping local chil- dren.
Haumea’s rare condition required an experienced multidisciplinary team at Kapi‘olani to craft a cus-
“She’s a champion that represents so much of what I see here in her success. I think that she’s a fighter and her family’s the best sup- port system I’ ve ever seen,” states Kapi‘olani physical therapist Stacie Keliinoi.
Haumea Friel is pictured with her dad Calen.
PHOTO COURTESY KAPI‘OLANI MEDICAL CENTER FOR WOMEN & CHILDREN
The medical center’s par- ent company Hawai‘i Pacif- ic Health shares that every year, CMN Hospitals hon- ors a select number of chil- dren and families for the role of national champion. Haumea is recognized this
For more info about the medical center, visit kapio- lani.org, and for more about the CMN Hospitals, visit cmnhospitals.org.
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